Monday, March 30, 2009

My "fame" preceeds me

Life has been pretty busy lately, and its gonna get even more hectic, so try to hang tight for the next couple of weeks. In case I disappear momentarily- I beg you- DON'T LEAVE ME! You're the only friends I got.

Now onto some breaking news-

Not too long ago, I made a vlog explaining what PKU is all about. Shortly after, I submited my video to the "rare disease day" organization. Seeing all the other (serious and matter of factly) videos submitted made me feel like the oddball. Still, I thought


Within a few days, my video quickly climbed up the rare disease channel "charts" and became number one! Suddenly, people started pasting my video everywhere. Its on so many blogger, facebook, myspace and other social networks that I cant even track it anymore. It was also sent out on several PKU email listervs and shared on a PKU fundraising for awareness site. The other day, a neurocisentist told me that he's incorporated my video into his graduates class. I have even found my goofy talking head on!

Not to mention (although I am), that MY video is the #25 most discussed this month (um...that would be in the "news and politics" section of the french branch of youtube. But still.)

I know all of this because I've been cyber stalking myself.

People often say that they "like comments." Thats not true. I know it because I say it too. I dont like comments. I like compliments. Thats what "comments" are all about. They are expressions of love to a socially deprived cybergeek. That's why I went on a hunt to gather as many as I could find. Let me toot my own horn here and tell you that I cannot keep up with the kudos and props.

Cuz Im all that. and a bag of chips.

Not too long ago, Isaac, Katy and I made our five hour trip to see the genetecist in his new location. Since he moved, he had a new metabolic dietician and we were looking forward to meeting her. When the door opened, I was greeted by

"I know YOU! You're that mom in the PKU video! Wooow! You're like a celebrity!"

*let me take a second or two to gloat in silence*

Fame and fortune, here we come!

I can see it now...

ps- leave compliments, ahem- comments...

Tuesday, March 24, 2009

the proposal

“DO NOT OPEN ‘TILL 2 O’clock,” the box said.

Isaac had come by to give me that box (along with a shovel) at nine AM. The wait seemed eternal. Butterflies tickled my stomach as I paced my house with impatience and curiosity.

It was two minutes until 2, and I decided that enough was enough. I opened the box. Inside were the oddest things. A pile of change, a disposable camera, a knife, several envelopes and Eric’s phone number.

I grabbed the envelope labeled “Read me first,” and opened it.

“You are about to embark on a quest,” it said. “The items that you need are provided in this box. These envelopes will guide you through. The camera is for taking pictures of your journey, the, the knife for cutting things loose, the change to use public telephones, the shovel for digging and Eric’s number in case you face unexpected accidents or mistakes. He has the master plan.”

How exciting! There was another envelope in the box. It read “In the beginning.” There was a love note inside detailing how Isaac and I first met. Then, my very first set of instructions. “Call Raymond at work at 2:10. He will give you further instructions.” I dialed Joe Brand Company and asked for Raymond. He picked up the receiver and began to sing the theme song from Mission Impossible.

“Your assignment, should you choose to accept it, is to go to the place where you and Isaac first met. You have fifteen minutes,” he hung up.

The church! I met Isaac at church! I drove in a hurry and there, at the church entrance was taped up another envelope. It was labeled “Month One.” Inside, were some brief memories from our first month of dating, along with the next set of instructions. I was to go to the back of the church and dig for the next clue. I had five minutes. The following clue was a box, in it, an envelope labeled “Month two.” Just like the previous one, It detailed the happenings of our second month as a couple and gave me further instructions.

One by one, my clues were preceded with memories and concluded with a time limit for the next finding. I used the camera, the tape, the change- everything. I was led through all the romantic spots we had known in the city. In each memorable location was another clue. There were also many people involved in my adventure. People from Isaac’s work, family members (his and mine) and friends were all participating.

At last, I found the final clue. Month 19. It had a bible verse and a prayer. Then, it instructed me to walk a block to the nearest orange grove. My heart skipped a beat. The orange grove! In the early months of our relationship, Isaac and I were taking a stroll down that very same grove.

“Michelle, will you marry me,” he asked.

I smiled, “sure!”

“I’m serious,” he continued. “The next time I ask you this question I will have a ring in my hand and we will stand in this very spot.”

Now, I was headed to that same orange grove. My heart was pounding and my feet were racing. The sun was hot, but the breeze was cool and the trees were dancing in the summer wind. The sunset was spectacular, as it always was in “the valley.”

I could see him in the distance. His tall, slender figure stood in the midst of the tress. He was dressed in a black Armani suit. I nearly froze. I approached him, slowly. When I was just a few steps away, he got on one knee and pulled out a little black box from his pocket.

“Michelle, will you be my wife?”


The wedding was six months later. Isaac and I have been married nine years now and have a beautiful little girl. It’s a dream come true. My very own fairy tale.

Sunday, March 22, 2009

Thursday, March 12, 2009

wanna know something weird?

An old friend just called to tell me that he had a grand baby a month and a half ago. The baby tested positive for PKU. For a month and a half, this baby was on a supplemental formula. The baby was getting her blood tests every week. But yesterday. they got a letter from the hospital. The letter said that there were NO PKU findings.

When I hung up the phone I cried.

I had such emotional chaos. I'm thrilled for them. Absolutely thrilled. But I wish that letter had been in my mail box...

But I can't live my life wishing I was someone else. This is MY blessing. This is MY herriatage. This is MY baby- and I am HONORED and HUMBLED to be her mother. I know that I too, have received amazing letters that others wish they had in THEIR mailbox. We have fought against serious odds and conquered. Slowly but surely. I cannot let envy keep me from looking up. I cannot let jealousy steal my blessing.

My God is real and He is also working miracles in our lives. Just watch and see. He's not done. The greatest things are coming up.

Monday, March 9, 2009

Ok, so I never do this...

But I have a cousin who has an AMAZING stupid criminal blog entry. This actually happened to her recently

so, click it- yo.

Sunday, March 8, 2009

Im still a sucker for sappy romance

I have been real disenchanted when it comes to romance from the past centuries. In my mind, I imagined a world where feelings were regarded as foolishness and therefore completely ignored. Well imagine my surprise as I discovered the following painting about a Huguenot and his Catholic lover:

Here's what makes the picture extra special: I am a Huguenot descendant. Now, here is the ultra short explanation of the Huguenots. They lived in France about five hundred years ago, when Martin Luther began his protestant movement (doing "outrageous" things like translating the bible so that everyone could read it, not just the priests). The Huguenots were deeply transformed by Luther and his vision (And also Calvin, but lets not dive so deep into this ocean), that they cast off their Catholic commitments to follow Martin Luther's vision.

This is LUTHER- the movie about the dude I'm talking about(He changed the world):

Well, you know what happened. It was a bloody mess. Literally. Infidels were persecuted and murdered. My Huguenot family ended up fleeing to Ireland for safety, where they eventually migrated to Canada and United States. Now, understanding the scope of this religious alliance, along with all its implications, take one more look at the painting above and tell me-

Is it not more tragically romantic than Romeo and Juliet???


Wednesday, March 4, 2009

What happens with daddy- Stays with daddy

My husband rocks. He is so eager for me to go out and have fun with friends that he practically pushes me out the door. Its been me who has been hesitant to leave my duties. Im the annoying sort of person who acts like there is only one right way to do things (when it comes to housework and Katy).

Yes. It drives Isaac bonkers.

But, the other day I was offered to go watch "He's just Not that Into you," a movie that Isaac would NEVER agree to watch (he would probably gouge his eyes out five minutes into it). I went out with another friend who's boyfriend would also hate the experience just as much as my man.

When I came back home, Isaac had a video to show me. It was this: much for perfection. At least they had fun.

Sunday, March 1, 2009

The Anthem of our Faith (a music video by my man)

Isaac and I have gone through quite a bit together. We've moved from country to country, had our car stolen, experienced life threatening illnesses and more. But without a doubt, it was the attack on our baby's health that nearly crushed us.

This time, even turning to each other didn't ease the pain or the horror. There was only one place to turn for hope- God. During all the poking and prodding, and even before there was a diagnosis made on our little one, Isaac clung to a specific word for our daughter.

Psalm 61

Hear my cry, O God;
listen to my prayer.

From the ends of the earth I call to you,
I call as my heart grows faint;
lead me to the rock that is higher than I.

For you have been my refuge,
a strong tower against the foe.

I long to dwell in your tent forever
and take refuge in the shelter of your wings.

For you have heard my vows, O God;
you have given me the heritage of those
who fear your name.

Increase the days of the king's life,
his years for many generations.

May he be enthroned in God's presence forever;
appoint your love and faithfulness to protect him.

Then will I ever sing praise to your name
and fulfill my vows day after day.

Isaac turned that psalm into his song. Literally. As Katy seized or lay absently from us in her bed, he would sing these words over her little life. For months, he couldn't get through the song without breaking down and crying. That song was our anthem, and we believed it whole heartedly.

As a declaration of faith over our daughter's healing, Isaac and I became very public about Katy's testimony (hence this blog), saying that no matter where she was at today, the whole world would stand in awe and see God's faithfulness over our lives. We challenged people to stick around and watch a miracle unfold in front of their very eyes. Then, Isaac would sing his song.

Every time he played his song, hundred's of people began to respond in faith for the miracle that they needed. Pretty soon, people began to ask if Isaac's music was recorded. Seeing the need for this message to get out, we recorded Isaac's first CD.

It hasn't even been one year since its release, yet nearly one thousand CDs have been sold. As a natural consequence, hundreds of people have contacted us to tell us how Katy's story and Isaac's song helped them believe for their miracle as well. As of now, Isaac has toured the entire country of Mexico and shared his music and our testimony more times than we can count. In April, he will be performing in a concert for about five thousand people.

The following is Isaac's video for Psalm 61. To think it all started over a crib with tears streaming down his face...

Although the video is in Spanish, you can read the lyrics in Psalm 61. The intro says

"This is a song that came at a time of few answers. We stood powerless over our daughters future, upon knowing her diagnosis: She would not walk or talk..."

For the story of the amazing debut of Isaac's first concert Click here